Wednesday's 5, the late version...

Wow, this week has come and gone! Wednesday's 5 is basically my week review, I haven't posted much this month, it's just been so nice that I've spent alot of my time outdoors during the week! On the weekends, we just hang out with the kids outdoors and do some family stuff...we love spring!!!
5 things/happenings from around our house..

1. Ezra's learning some interesting things in 4th grade. His IB class is touching several areas including the holocaust, along with US government branches and how they operate... IB is his favorite part of the day!


2. We're painting tiny wood Easter eggs and a small wood Easter egg tree to use as our centerpiece this weekend... we ran out of white washable acrylic - so to the craft store I must go! I will post a photo of our finished project in our photo journal eventually!


3. Jesse has decided that he will take one of the major steps in potty training... telling me every time he goes. I'm super excited for him! Soon enough he'll graduate from potty training! I'm not the potty Nazi, he's doing this 100% in his own time. He's proud to announce the items of interest in his diaper each and every time.


4. Baby Trey was back in the hospital again this week, he's home now after a yucky virus that left him dehydrated. He's doing good now!


5. And I end my 5 things about our week with this.... it seems that Jesse is going through some serious developmental changes, leaving him feeling a little anxious during certain parts of our day that are consistently routine... for now it's bath time anxiety. I'm keeping my fingers crossed that as the pediatrician suggested, this will pass as quickly as it arrived! It seems that between 18 months-2.5 years that most children go through small bits of anxiety on occasion because everything about them is changing... makes perfect sense after researching it a little more by reading some reliable information written by the experts in child development as well as talking to our pediatrician. Mommy intuition told me it wasn't a huge deal, but it's always reassuring to hear it out loud 'you're not alone in this!'. For some kids it's bedtime/naps, diaper changes, car rides, or even bath time. We remember very clearly that Ezra went through a period of bedtime anxiety around 3 years old!

Baby Trey updates....

I've moved updates to the side bar - will update when I get new information...

Hopeful Hearts for Trey

My sister-in-law and brother-in-law have taken an opportunity to foster, with fostering they’ve prepared themselves for babies/toddlers with delicate medical conditions, preemie’s and babies born to drug addicted moms. They’ve been parents to Trey, 8 weeks old, since he was discharged from the hospital after delivery. Trey has been diagnosed with DiGeorge Syndrome… DiGeorge syndrome is a genetic disorder with varying conditions present in each individual with the syndrome. However, conditions that are common to the syndrome include certain heart defects (Trey has 4), effects on facial appearance (Trey has lowered ears and a widened nose), and lack of or underdeveloped thymus and parathyroid glands. You can read/learn more about it here http://www.22q.org/index.html; right now his full range of diagnosis (so far) are tetralogy of fallot, DiGeorge Syndrome, 14 Q deletion, Velopharyngeal Insufficiency, Moderate dysphagia, severe GER, umbilical hernia, possible spinal bifida, and then whatever the diagnosis name is (don't know yet) for him having very poor immunity in skin related disorders.

Right now, Trey is having complications with the 4 defects he has with his heart from birth. This week, he was hospitalized for 2 days for a virus and it seems that since then his heart has not been able to remain stable. His oxygen sats have been low and dangerous (60’s,70’s,and 80’s), and they’re not improving; and it is feared that congestive heart failure may be what’s causing these sudden changes. There’s so much more to his delicate medical condition, and at 8 weeks old he’s been seen by and has been placed under the care of more doctors then most of us will have in our lifetime…but I am writing for one thing. Only to ask that you take a moment and put your thoughts and prayers with Trey and his family while they face a hard road ahead in the next week. Tuesday of next week he will be admitted for pre-op surgery, then open heart surgery on Wednesday. He will likely be in the hospital for a while (according to sis-in-law, she’s been told to prepare for 3 days in ICU then move to the heart floor), at the time of surgery he’ll be around 9-10 weeks old, and while it’s amazing that there are doctors and surgeons capable of overseeing and performing such a task on such a tiny heart, it would make sense to say that it will be a delicate recovery for Trey.

There’s another bit of information that makes this road ahead a little more difficult, my sister-in-law, brother-in-law, their youngest daughter and their 9 month old foster son (also born a preemie and addicted to meth) ALL came down with the flu this week.

Here’s a picture of Trey. How adorable is this little guy who has to endure so much so early… Thanks for taking a moment to read this, and taking a moment to send well wishes, thoughts and prayers their way.

**You're welcome to leave well wishes, and thoughts as a comment here for the family, and I will forward them to the family. I am not at liberty to share their personal email info/blog info due to the fostering rules they respect and live by in order to protect the identities of their little foster angels.