Friday, February 8, 2008

Hopeful Hearts for Trey

My sister-in-law and brother-in-law have taken an opportunity to foster, with fostering they’ve prepared themselves for babies/toddlers with delicate medical conditions, preemie’s and babies born to drug addicted moms. They’ve been parents to Trey, 8 weeks old, since he was discharged from the hospital after delivery. Trey has been diagnosed with DiGeorge Syndrome… DiGeorge syndrome is a genetic disorder with varying conditions present in each individual with the syndrome. However, conditions that are common to the syndrome include certain heart defects (Trey has 4), effects on facial appearance (Trey has lowered ears and a widened nose), and lack of or underdeveloped thymus and parathyroid glands. You can read/learn more about it here; right now his full range of diagnosis (so far) are tetralogy of fallot, DiGeorge Syndrome, 14 Q deletion, Velopharyngeal Insufficiency, Moderate dysphagia, severe GER, umbilical hernia, possible spinal bifida, and then whatever the diagnosis name is (don't know yet) for him having very poor immunity in skin related disorders.

Right now, Trey is having complications with the 4 defects he has with his heart from birth. This week, he was hospitalized for 2 days for a virus and it seems that since then his heart has not been able to remain stable. His oxygen sats have been low and dangerous (60’s,70’s,and 80’s), and they’re not improving; and it is feared that congestive heart failure may be what’s causing these sudden changes. There’s so much more to his delicate medical condition, and at 8 weeks old he’s been seen by and has been placed under the care of more doctors then most of us will have in our lifetime…but I am writing for one thing. Only to ask that you take a moment and put your thoughts and prayers with Trey and his family while they face a hard road ahead in the next week. Tuesday of next week he will be admitted for pre-op surgery, then open heart surgery on Wednesday. He will likely be in the hospital for a while (according to sis-in-law, she’s been told to prepare for 3 days in ICU then move to the heart floor), at the time of surgery he’ll be around 9-10 weeks old, and while it’s amazing that there are doctors and surgeons capable of overseeing and performing such a task on such a tiny heart, it would make sense to say that it will be a delicate recovery for Trey.

There’s another bit of information that makes this road ahead a little more difficult, my sister-in-law, brother-in-law, their youngest daughter and their 9 month old foster son (also born a preemie and addicted to meth) ALL came down with the flu this week.

Here’s a picture of Trey. How adorable is this little guy who has to endure so much so early… Thanks for taking a moment to read this, and taking a moment to send well wishes, thoughts and prayers their way.

**You're welcome to leave well wishes, and thoughts as a comment here for the family, and I will forward them to the family. I am not at liberty to share their personal email info/blog info due to the fostering rules they respect and live by in order to protect the identities of their little foster angels.


Douglas, Jennifer,Brittany, Alexis & Nicholas Glover said...

Baby Trey will be in my thoughts and prayers everyday until I know he has recovered! He is a beautiful child and deserves to live a long and healthy life!

rose said...

I truly will be praying for baby Trey, as I know very well about genetic birth disorders. Tell them to keep the faith and to know that They are blessed for caring for this precious one. It will make stronger people of them. May God grant them the strength each day
Darlene Patterson